Featured Book for Neuropathy Week

Fierce Joy: A Memoir


by Ellen Schecter is not just a book. It is an awesome journey into rediscovering the world of new hope and new meaning. Propelled by two devastating, life-threatening incurable illnesses, she enters into new worlds. Out of this devastation she shares, in brilliant style, her story of Fierce Joy discovered. Diagnosed with systemic lupus and CIPD (chronic inflammatory demyelinating polyneuropathy), Ellen writes with a brilliant down-to-earth realism, sprinkled with lots of humor, while opening paths to the rediscoveryof joy while chronically ill. It is a book for anyone who is seeking “healing” while hoping for cures.

Note: Ellen Schecter is well known for her works which include The Magic School Bus staring Lily Tomlin and Reading Rainbow starring LeVar Burton and the Bank Street Ready to Read series. Her contributions to helping children read have been featured in magazines including Child, Parenting, Sesame Street Parents and others.

Peripheral Neuropathy When the Numbness Weakness and Pain Won't Stop

Welcome to The Neuropathy Support Network. We are here to Help!

The purpose of the Neuropathy Support Network is to provide volunteer support, guidance, counseling and information to neuropathy patients. Our mission includes creating a coalition of neuropathy patient advocates and neuropathy organizations that neuropathy patients can turn to for help; and to raise awareness among physicians and medical organizations of the seriousness of neuropathy, the suffering that serve neuropathy patients endure, and awareness of the possible treatments and medicines that exist.

If you suffer from Neuropathy, or have a friend or loved one who does, we are here to help. Go to the Contact Us page and fill out the contact form with your neuropathy question(s) and we will get back to you. Questions are answered in the order in which they are received.


ABOUT OUR BANNER

A human figure stands alone in a large field, buried waist deep in grass, arms reaching out in lonely isolation, seeking answers. Millions of neuropathy patients reach out blindly toward some sense of help, from “somewhere.”

The human figure symbolizes many patients, experiencing neuropathy in an isolated world of strange symptoms. Feeling buried under negative opinions, loss of purpose and friends, often alone in their struggle, with courage they reach out. In this simple act they find hope in a network of patients and a few professionals.

ABOUT THE DVD

The purpose of the Coping with Chronic Neuropathy DVD is to help others reach out, find answers, spread hope and raise funds for neuropathy research.

Discussed is the power of faith, increasing your neuropathy knowledge, getting and giving patient support, and learning to adapt to the changes neuropathy brings to lives - while remaining focused on getting help for your neuropathy.

Answers to your neuropathy questions.

“A story of hope and courage as told from the perspective of the real world of the Neuropathy patient”

Thomas H. Brannagan III, MD, Neurologist, Medical Advisor to The Neuropathy Association, Director of the Neuropathy Center of Excellence, Columbia University, NYC



. JOIN the NSN TODAY
and get updates on

Special Reports,
and Upcoming Events!

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Announcements & Calendar of Events

May 14 - 18, 2012 – National Neuropathy Awareness Week

June 20, 2012 – Neuropathy Action Foundation's 6th Annual “Neuropathy Action Awareness Day” at the Sheraton Grand Hotel, Sacramento, CA. For registration materials and more information visit the Neuropathy Action Foundation's website and/or right click on the Registration Form link and then select "save target as" and save to your desktop. To read this PDF file will require Adobe Reader. Registration Form Link

To view Facebook sites of online support groups available for those who cannot attend in person click below:

“Support for Neuropathy” , Ms. Jessica Benjamin, Administrator

“Our Neuropathy Friends” , Ms. Kathy Moore, Administrator

HAVING A CONFERENCE? – Are you having a SPECIAL neuropathy meeting, conference, or seminar? Advertise it here by sending the information on WHO, WHAT, WHERE, HOW to gene@neuropathysupportnetwork.org and we will post the information. We are approaching over 2000 visits a month to this site for information every month from all parts of the U.S. and worldwide.


DISCLAIMER: The information on this web site or the links or in the guidance provided is intended to be educational and informative and not medically prescriptive or diagnostic. All patients are encouraged to consult with their own medical doctor when considering any information contained in this web site or other web sites noted.

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