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SPECIAL ANNOUNCEMENTS


The 13th International Symposium
Hosted by the
GBS/CIDP Foundation International

Where: Walt Disney World Coronado Springs Resort and Convention Center in Lake Buena Vista, Florida
When: October 31st – November 2nd, 2014

* Workshops, “Ask the Expert”, Research Updates, Networking with Members, “Walk & Roll” and much more.

* Free Airport Transportation on Walt Disney World Express

* Free WIFI on the hotel property

* Room Rate $125 nightly + tax (3 days pre and post Symposium)

For more information visit the

GBS/CIDP Foundation International website

Save the Date and register today at:

GBS/CIDP Foundation International
13th International Symposium
 
Disneys-Coranado-Springs-Resort

One Man's Journey with Neuropathy

His nightmare began in 1969 – one year after leaving the Vietnam War. Symptoms of autonomic and polyneuropathy neuropathy affected his breathing with upper body paralysis that brought him to his knees and affected other parts of his body; mysterious chest pains, electric shocks, painful skin, physical exhaustion, unexplained silent tachycardia, urinary and digestive problems all contributing to his nightmare.

An Army officer, he struggled for 18 years with severe electric shocks that began, uncharacteristically, in his upper body. Occasionally the symptoms would disappear and he would think the nightmare was over but it was not to be – the cycle would always begin again. The loss of stamina and periods of total exhaustion – the perception by others that it must be psychological – left him unable to continue. His distinguished military career came to a screaming halt. With medical records that contain many negative comments about his condition and his cycle of pain and symptoms, he retired from the Army in 1987. His dream was over and he hoped his nightmare would go away! <-read more->


Welcome to The Neuropathy Support Network. We are here to Help!

The purpose of the Neuropathy Support Network is to provide volunteer support, guidance, counseling and information to neuropathy patients. Our mission includes creating a coalition of neuropathy patient advocates and neuropathy organizations that neuropathy patients can turn to for help; and to raise awareness among physicians and medical organizations of the seriousness of neuropathy, the suffering that neuropathy patients endure, and awareness of the possible treatments and medicines that exist.

If you suffer from Neuropathy, or have a friend or loved one who does, we are here to help. Go to the Contact Us page and fill out the contact form with your neuropathy question(s) and we will get back to you. Questions are answered in the order in which they are received.


ABOUT OUR BANNER

A human figure stands alone in a large field, buried waist deep in grass, arms reaching out in lonely isolation, seeking answers. Millions of neuropathy patients reach out blindly toward some sense of help, from “somewhere.”

The human figure symbolizes many patients, experiencing neuropathy in an isolated world of strange symptoms. Feeling buried under negative opinions, loss of purpose and friends, often alone in their struggle, with courage they reach out. In this simple act they find hope in a network of patients and a few professionals.

ABOUT THE DVD

The purpose of the Coping with Chronic Neuropathy DVD is to help others reach out, find answers, spread hope and raise funds for neuropathy research.

Discussed is the power of faith, increasing your neuropathy knowledge, getting and giving patient support, and learning to adapt to the changes neuropathy brings to lives - while remaining focused on getting help for your neuropathy.

Answers to your neuropathy questions.

“A story of hope and courage as told from the perspective of the real world of the Neuropathy patient”

Thomas H. Brannagan III, MD, Neurologist, Director of the Neuropathy Center of Excellence, Columbia University, NYC



. JOIN the NSN TODAY
and get updates on

Special Reports,
and Upcoming Events!

.


Announcements & Calendar of Events

To view Facebook sites of online support groups available for those who cannot attend in person click below:

“Support for Neuropathy” , Ms. Jessica Benjamin - Administrator, Janet Cate - Co-Administrator

“Our Neuropathy Friends” , Ms. Kathy Moore and Mr. Paul Maziarz - Administrators

“Peripheral Neuropathy Support Group” , Mary Siniard - Administrator

HAVING A CONFERENCE? – Are you having a SPECIAL neuropathy meeting, conference, or seminar? Advertise it here by sending the information on WHO, WHAT, WHERE, HOW to gene@neuropathysupportnetwork.org and we will post the information. We are approaching over 2000 visits a month to this site for information every month from all parts of the U.S. and worldwide.


DISCLAIMER: The information on this web site or the links or in the guidance provided is intended to be educational and informative and not medically prescriptive or diagnostic. All patients are encouraged to consult with their own medical doctor when considering any information contained in this web site or other web sites noted.

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